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Resources

Information

The goal of the National Prevention Program is to reduce the complications of bleeding disorders. The NPP’s theme is “Do the 5”:

1. Get an annual comprehensive check-up at a hemophilia treatment center
2. Get vaccinated — Hepatitis A and B are preventable
3. Treat bleeds early and adequately
4. Exercise to protect your joints
5. Get tested regularly for blood borne infections

Patient Assistance Programs

Victory For Women with Blood Disorders is an awareness campaign related to bleeding disorders in women.

College Scholarships
The hemophilia community is fortunate to have abundant scholarships available to current and future college students with bleeding disorders to help them get the education they need to live the lives they dream.

Scholarships for Children with Disabled Parents

National Hemophilia Foundation

NHF’s Research Grants and Fellowships

NHF’s Medical and Scientific Advisory Committee (MASAC)

Center for Disease Control

The American Thrombosis and Hemostasis Network (ATHN)

Patient Notification System

NHF’s Steps For Living

NHF’s Victory for Women

Hemophilia Federation of America

Access Program
888.770.7010

Bleeding Disorders Legal Hotline
800.520.6154

World Federation of Hemophilia

Yahoo! Support Groups

Research and Medical Information

National Heart, Lung and Blood Institute
American Society of Gene Therapy
National Institute of Allergy and Infectious Diseases
Food and Drug Administration
Food and Drug Administration Recall Information
Causes-of-Hemophilia.com

Florida Treatment Clinics

All Children’s Outpatient Care Clinic
Pediatric Cancer and
Blood Disorders Center
601 5th Street South, Third Floor
St. Petersburg, FL 33701
Phone: (727) 767-4931

Center for Children’s Cancer and Blood Disorders at Arnold Palmer Hospital for Children
92 West Miller St., MP 318
Orlando, FL 32806
Phone: (321) 841-8588

Joe DiMaggio Children’s Hospital
Pediatric Specialty Center
1150 N 35th Avenue, Suite 520
Hollywood, FL 33021
Phone: (954) 986-2234

Lee Memorial Hospital
Department of Pediatric
Hematology & Oncology
9981 So. Health Park Dr., Suite 156
Ft. Myers, FL 33908
Phone: (239) 332-1111

Nemours Children’s Clinic, Jacksonville
Department of Pediatric
Hematology/Oncology
807 Children’s Way
Jacksonville, FL 32207
Phone: (904) 697-3789, (904) 697-3600

Nemours Children’s Clinic, Orlando
Department of Pediatric Hematology/Oncology
13535 Nemours Parkway
Orlando, FL  32827
Phone: (904) 697-3789, (904) 697-3600

Sacred Heart Pediatric Hemophilia Program, Pensacola
Phone: (850) 416-7712

St. Joseph’s Children’s Hospital
Pediatric Hematology Oncology
Out-patient Clinic
3001 W. Dr. Martin
Luther King Jr. Blvd.
Tampa, FL 33607
Phone: (813)554-8937

University of Florida
Department of Medicine
Adult Hemophilia
P.O. Box 100277
Gainesville, FL 32610
Phone: (352) 392-3000

University of Florida
Pediatric Hematology/Oncology
P.O. Box 100296
Gainesville, FL 32610
Phone: (352) 273-9120

The University of Miami Hemophilia Treatment Center
University of Miami Hemophilia Treatment Center
Pediatric Clinic Location
Alex’s Place at Sylvester
1475 NW 12th Avenue
Suite C103
Miami, FL  33136
Phone: (305) 689-7210

Adult Clinic Location
ACCW-3A
1611 NW 12th Avenue
Miami, FL 33136
Phone: (305) 243-6925

USF Adult Hemophilia Center
Hematology, 4th Floor
13220 Laurel Drive
Tampa, FL 33612
Phone: (813) 974-8839

Children’s Center for Cancer & Blood Diseases
Florida Hospital
2501 N. Orange Avenue, Suite 589
Orlando, FL  32804
407.303.2080