Mission
Florida Hemophilia Association is dedicated to enhancing the quality of life for members of the bleeding disorders community through educational, advocacy, and support programs.
About the Organization
Florida Hemophilia Association was founded in 1983 and has been a vital educational resource, network of support, and advocate for the bleeding disorders community in Florida. We are a leading resource for patients and families affected by hemophilia, von Willebrand Disease, and other bleeding disorders. We partner with others in the community, fostering education, networking with other families who share many of the same experiences, and advocacy in legislation.
FHA hosts numerous programs throughout the year which includes two state-wide educational conferences that are attended by over 400 patients and their families and are facilitated by providers from all over the country who are experts in the field of bleeding disorders. In addition, we also host specialized educational programs for teens, young adults, women, men, and caregivers. We also host 2-3 fundraisers per year that raise critical funds for programs such as our Compassionate Care Emergency Assistance Program. Our biggest fundraiser is our annual Unite Walk and attended by hundreds annually. The event has raised much-needed awareness and funds to help families affected with bleeding disorders living in Florida.
Florida Hemophilia Association
Staff
PEPPER ADAIR
Executive Director
TATIANA TEJEDA
Event Coordinator
2024 Florida Hemophilia Association Board of Directors
CARLOS MORETA
Board President
CRYSTAL HENDRIX
Board Vice President
MICHAEL ROSENTHAL
Board Secretary/Treasurer
NICHOLE KELLY
Board Member