info@floridahemophilia.org +1 (305) 235-0717

Mission

Our Mission At the Florida Bleeding Disorders Association (FBDA), our mission is to uplift and empower individuals and families affected by bleeding disorders across Florida. We are committed to enhancing quality of life through accessible education, compassionate support, and tireless advocacy. Our work bridges gaps in care, connects communities, and champions the voices of those living with conditions like hemophilia, von Willebrand Disease, and other rare bleeding disorders. Through every program, event, and initiative, we strive to ensure that no one walks this path alone.

About the Organization

Florida Bleeding Disorders Association was founded in 1983 and has been a vital educational resource, network of support, and advocate for the bleeding disorders community in Florida. We are a leading resource for patients and families affected by hemophilia, von Willebrand Disease, and other bleeding disorders. We partner with others in the community, fostering education, networking with other families who share many of the same experiences, and advocacy in legislation.

FBDA hosts numerous programs throughout the year which includes two state-wide educational conferences that are attended by over 400 patients and their families and are facilitated by providers from all over the country who are experts in the field of bleeding disorders. In addition, we also host specialized educational programs for teens, young adults, women, men, and caregivers. We also host 2-3 fundraisers per year that raise critical funds for programs such as our Compassionate Care Emergency Assistance Program. Our biggest fundraiser is our annual Unite Walk and attended by hundreds annually. The event has raised much-needed awareness and funds to help families affected with bleeding disorders living in Florida.

Florida Bleeding Disorders Association Staff

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Pepper Adair

Executive Director
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Tatiana Tejeda

Event Coordinator

2025 Florida Bleeding Disorders Association Board of Directors

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Carlos Moreta

Board President
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Nichole Kelly

Board Member
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Crystal Hendrix

Board Vice President
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Michael Rosenthal

Board Secretary/Treasurer